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      There is an advocacy center in Minnesota that has a national network

      that REALLY helped me when I had kids in Special Ed in public schools.

      Their name is Pacer Center ( They offer

      education and advice and have even assigned an Advocate to come to

      meetings with me at the school free of charge.

      Their site says they have national partnerships. Certainly worth a

      try if you are struggling to find low or no cost advocacy in your area.


      — In, maria wrote:


      > I agree but where do I find a good advocate that is free?


      > dash wrote: Under the “IDEA” law, formerly

      94172 I believe there are provisions especially for the Autism

      spectrum. Your son needs specialist training and care.


      > I know what you have been through. We moved away, sold our new

      home, lost money on lawyers and got our kid away from a school that

      locked him in a closet. A nightmare…. I sued…

      long story… but

      I have never ever been a moment sorry we did that….as we had another

      child to raise and I had to get away from that school system…. I was

      like raw hamburger meat…. whenever I got another call from the

      school or a letter I would shake… I had to get away… and get my

      son away…


      > The iep is to be written and there is no excuse like not enough

      staff to fulfill the needs of the child or not enough money…..that

      is the school’s problem to figure out how to give your child an

      appropriate education……and the team must decide the placement.

      you are part of that team.


      > you need to be more involved and know the answers to the questions

      you ask.


      > first of all, you don’t give any blanket sharing to the doctors

      from the school. you want an independent evaluation, so you tell them

      nothing about what the school says. you don’t sign blanket releases

      and you don’t give permission for anyone to talk to one another

      without complete disclosure to yourself in writing. you are the

      chief. none of them have as much invested in your child as you do.

      you can limit all correspondence and demand to sign a new release for

      each and every correspondence and do not ever let it open ended. you

      have all the rights under the law, if only you know them.


      > you need a decent advocate that knows what she/he is doing… dash





      > hi!!

      > i do appreciate the help! if you only knew what i have been

      through with the schools and the doctors for that matter.he was dxed

      at the age of 5 by the school with adhd.trying to get a doctor to do

      any thing without a schools follow up is almost impossible! i have

      gone to a developmental center in hopes that they would listen and see

      what i saw but all most of the doctors here do is look at what tesing

      the school has done and agree with them! my son is dxed with being

      disabled due to kidney damage(he has to use catherthers every 4 hours)

      also I was told he has mild adhd with autistic tendencies,he is not

      medicated,he also has learning disablities,he was taking speech and ot

      in 4th grade but no one has meationed him having it in 5th and is also

      developly delayed.

      > While my son was in 4th grade, I wanted to transfer him to another

      school and the principal there told me they didn’t have the staff for

      my son to go to that school and he called the head of the special ed

      and asked if he was suitable for the self contained class,and the head

      told him that she didnt think my son was that severe to be in that

      type of class. So he couldn’t go to that school,I was under the

      impression that he was in resource classroom all this time and was

      going to regular classes in both 4th and 5th grade,I don’t think he

      should be in the SLC room but I don’t think he should be fully

      mainstreamed either. I just don’t know if there is anyother options of

      classes he can go into. I have contacted Lynley Summers as my

      advocate,but nothing was changed 4except the cars test was given to

      him and what gets me about the test is that the school part he didn’t

      show any Autistic tendinces but at home he scored high! I do see alot

      of ADHD and I agree witht he

      > Developmenatl center that he does have autistic tendencies,but I

      don’t agree with the placement,for I think it can hinder him instead

      of bringing out the best in him,to this day I still have not found

      out what he is good at or in. I don’t want him to slip though the

      cracks,but I have no idea if there is anyone who cares enough to

      listen to me and help me do something about it.








      > Maria

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